Testimonies

Research and Reports

ANCOR and UCP Release Case for Inclusion 2024: A Look at I/DD Services

Last week, ANCOR and United Cerebral Palsy (UCP) unveiled the latest Case for Inclusion report: Transforming Temporary Progress into Long-Term Sustainability. The report is a vital resource assessing the effectiveness of state Medicaid programs in serving individuals with intellectual and developmental disabilities (I/DD) and their families. Since 2019, ANCOR has partnered with UCP to publish this comprehensive report, combining transactional data with transformational stories to inspire positive change.

The Case for Inclusion 2024 provides a deep dive into community inclusion across three data snapshots, featuring nearly 80 measures spanning six crucial issue areas: Addressing a Workforce in Crisis, Promoting Independence, Reaching Those in Need, Serving at a Reasonable Cost, Keeping Families Together, and Tracking Health, Safety & Quality of Life.

Key findings from the report shed light on critical issues, including notable increases in hourly wages for direct support professionals (DSP), rising vacancy rates with full-time vacancy rates increasing to 16.5% and part-time vacancy rates increasing to 20.3%, and persistent challenges in addressing waiting lists for home- and community-based services (HCBS) with 497,354 people on state waiting lists for HCBS aoss the country.

The report also emphasizes that 17 states and the District of Columbia have closed their state-run institutions. Furthermore, it highlights the participation of 38 states in the federal Money Follows the Person program and the approval of 18 demonstration waivers nationally addressing social determinants of health with 17 more pending.

A Case for Inclusion 2022

The Case for Inclusion 2022 offers new data assessing how well state programs are supporting people with intellectual and developmental disabilities to be included in the community, as well as policy analysis examining the impact of pandemic-era policies on the sustainability of community providers.

Federal Policy Priorities for the Direct Care Workforce

This PHI report offers an extensive and detailed set of federal policy recommendations to strengthen the direct care workforce across eight issue areas: financing, compensation, training, workforce interventions, data collection, direct care worker leadership, equity, and the public narrative. The report offers nearly 50 concrete recommendations for the White House, Congress, and key federal departments and agencies. It also includes recommendations for navigating and learning from COVID-19.

PHI Quality Care Through Quality Jobs

This report is the culmination of a year-long series of reports (released throughout 2020) providing a comprehensive, current-day analysis of the direct care workforce and its critical role in the long-term care system in the United States.

Direct Care Workers in the United States: Key Facts

This report provides detailed data on the direct care workforce—home care workers, residential care aides, and nursing assistants in nursing homes—including demographics, occupational roles, job quality challenges, and projected job openings.